The Alessia Rose Foundation
Our goal is simple: In honor of our daughter, Alessia Rose, we aim to create awareness, support solutions and care, and ultimately reduce/eliminate the risks that are associated with extreme prematurity.
Alessia Rose was born on July 23, 2017 at 1lb 5.4oz and 11.5” long, just shy of 25 weeks gestation due to a placental abruption.
During her 140 days in the UCHealth Memorial Central NICU she experienced a rocky course as a result of her extreme prematurity: adrenal hemorrhage, necrotizing enterocolitis (NEC), pneumonia, retinopathy of prematurity (ROP), and more. Many of her conditions required surgical intervention as well as exploratory efforts to diagnose. Although she was beginning to thrive and was close to coming home and joining her family, a sudden and acute digestive event took her life on December 10, 2017. Throughout her journey, Alessia left quite an impression on all who knew and cared for her and beyond. She fought every day with grit, courage and a strong will to survive. Her parents and family love and cherish Alessia with every fiber of their being and feel an enormous void with her absence.
It is of utmost importance to carry on Alessia’s legacy and draw attention to the specific ailments that cause premature deliveries, negatively impacting both Mom and baby. The Alessia Rose Foundation strives to support the efforts of the medical community that work tirelessly to care for these babies and their families. Donations will go towards clinical research/trials, as well as financial support to recognize and reward clinical support staff for outstanding care. Furthermore, The Alessia Rose Foundation wants to provide parents, families and guardians access to necessary resources during this highly stressful and emotional journey. Please consider a gift to support this important work.